Jamie Sullivan joined the EveryLife Foundation for Rare Diseases in July 2020, where she serves as the senior director of public policy.

Previously, she served in a variety of roles for the COPD Foundation for more than a decade. Her work has focused on achieving patient-centered federal, state, and regulatory policy changes in the areas of health appropriations, public health and regulatory infrastructure, and access to care. In her role at the COPD Foundation, she also focused on building programs to engage and train patient advocates as well as advocating for the robust inclusion of patient and caregiver perspectives in all aspects of treatment development and review. Prior to joining the COPD Foundation, Jamie supported the research and clinical programs of the Alpha-1 Foundation. She obtained her Master’s in public health policy and management at Florida International University.